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EB Resources
Announcing our new Coordinator of EB Affairs, Leslie Rader
Leslie Rader has recently joined Hollister Wound Care as Coordinator, EB Affairs. In this role, Leslie is responsible for the development of programs and information to assist physicians, families and patients associated with Epidermolysis Bullosa (EB). Leslie's knowledge and experience is extensive, both as the mother of an EB child and from nearly five years with Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA), the primary EB patient advocacy group in the U.S. While at DEBRA, Leslie created and organized the New Family Advocacy program. This program serves the parents of newborns with EB by providing practical, hands-on information regarding wound care, medical supplies, insurance and the range of issues related to the care of babies with EB.
Leslie Rader
Leslie has been a member of the Board of Trustees of DEBRA of America since 2006 and is the chairperson of the Butterfly Benefit Fashion Show Luncheon and silent auction, a charitable event held each year benefiting the DEBRA New Family Advocate Program.
Her knowledge, experience and passion are a vital part of Hollister Wound Care's commitment to serve the EB community. Contact Leslie at 1-888-EBAID4U or leslie.rader@hollisterwoundcare.com to learn more about Hollister Wound Care's EB programs and services.
Resources for Epidermolysis Bullosa (EB)
EB Information Request
Click here for additional information about EB.
Hollister Wound Care Products for Virtually Pain-Free Wound Dressing Removal
Hollister Wound Care is proud to introduce Restore™ wound care dressings with TRIACT Technology. The new and innovative TRIACT Technology prevents dressing adherence and offers virtually pain-free dressing removal. The non-adherent properties of the dressings also help prevent disruption of the wound healing process during dressing changes.
Learn more about TRIACT technology
Video Testimonial
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(Video Length: 1:30)
Kadee Troop shares her testimony about Hollister Wound Care Restore dressings. View this testimonial.
Public Service Announcement Creates Awareness About EB
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(Video Length: 1:30)
Beginning June 2010, the Discovery Health network is airing a public service announcement (PSA) to create awareness of EB. Sponsored by Hollister Wound Care, this 90-second segment features the compelling story of Zach, a 7-year-old EB patient. The segment highlights the impact of EB on patients and their families and includes interviews with the physicians treating these patients. View this 90-second PSA.
Clinical Studies
Clinical cases demonstrate that the new flexible lipido-colloid contact layer could be used in the treatment of lesions of hereditary EB patients. These clinical cases demonstrate the high level of patient tolerance of this interface, as well as its comfort and efficiency. The fact that replacing the dressing daily is virtually painfree improves patients' quality of life and facilitates the administration of nursing care.
In a recent clinical study of EB patients, 91% of dressing changes were reported to be pain-free.
Additional Resources for Patients and Families
The Dystrophic Epidermolysis Bullosa Research Association of America (DebRA) is a national non-profit organization dedicated to Epidermolysis Bullosa.
DebRA